Caregiver Sustainability & Advocacy

National Caregiver Summit

Millions of caregivers provide critical support across the United States – from caring for aging parents and children with special health care needs  to connecting individuals with critical resources. All caregivers across the spectrum are essential to ensuring that individuals achieve health and well-being with dignity. And while caregivers have long been the pillars of families and communities, their lived experience and cultural relevance continue to be undervalued.

Consequently, caregivers – who are often women and women of color – face constant obstacles, including unfair pay, inequitable hiring practices, and lack of opportunities for professional advancement. As we collectively face one of the biggest health and economic crises in modern history, caregivers – whose contributions are more critical than ever – and their allies have an opportunity to make a strong, collective case for change.

The National Caregiver Summit is a two-day, interactive virtual event that will foster learning and collaboration while driving advocacy and action on key issues that impact all caregivers.

Caregiver Voices (Sensemaker)

Share Your Caregiver Story – And Help Advocate for Caregivers Everywhere

We would like to learn more from caregivers on what would make their work and their experience better – and we can learn a lot from storytelling. We want to hear your stories to better understand the caregiving experience as they are happening across the United States.

Our Sensemaker storytelling tool is easy to use and will take about 15-20 minutes of your time.

We will be reporting results and findings along the way, so check back here for updates and subscribe to our newsletter!

National Caregiver Coalition

In May 2021, Health Leads and our partners launched the National Caregiver Summit, which was designed by caregivers for caregivers. Across the country, caregivers and their advocates called for action on key issues that impact all caregivers. The result was an engaged community that recognized their similarities in opportunities and challenges, especially regarding caregiver health and well-being, with financial sustainability as a top priority.

In response to priorities uplifted during the 2021 Caregiver Summit, Health Leads is facilitating the Caregiver Coalition – a group of caregivers, including institutional partners – to spend 14 months collectively tackling the issue of financial sustainability.

Goals of the Caregiver Coalition include:

  • Creatively collaborate and work towards a solution
  • Keep the broader caregiver community engaged and maintain excitement for the 2023 Caregiver Summit
  • Leverage the summit to bring the community together and share progress made to date on coalition goals
  • Help recruit and onboard new coalition members




Questions about the coalition?

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